Interdisciplinary Disability
Studies (IDS)
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Are Nations United Around Disability?
By: Scott Clement and Barbara Vittum
Supporting Principle
Persons with disabilities are entitled to exercise their civil, political,
social, economic and cultural rights.
Background and Rationale of the UN Response
Because a single definition of disability does not exist, prevalence rates,
opportunities and inclusion for those with disabilities are vague. Prevalence
rates which vary from 5 to 20% depend on the cultural context of the population,
and varying methodologies used.
Further contributing to the confusion about the nature and magnitude of
disability are the multiple theoretical models that have been developed in the
late 20th and early 21st centuries, indicting social, political, cultural,
economic factors rather than embodied medical anomalies, as causative of
disability (DePoy & Gilson, 2004; Loeb, Eide, and Mont, 2007).
Socio-cultural and economic differences not only affect how disability is
defined, but how scarce resources are distributed. (Albrecht, Devlieger, and
Geert van Hove, 2007).
It is estimated that 10% of the world's population is medically disabled. 1 in
10 will have mental, sensory or some type of embodied impairment.
Millions with embodied conditions are disabled by extreme exclusion and systemic
barriers to political/economic and socio-cultural advantages.
Cultural domination and social patterns of disrespect and marginalization have
deprived medically disabled people from full participation in the labor market
(Parker, 2006).
Embodied disability is both a cause and consequence of poverty, causing profound
negative effects on humans, especially in poor developing nations where
resources are scarce. Some 3.3 billion people live on less than $2.00 a day; as
a result of poverty. Poverty results in poor nutrition causing ill health and
embodied disability, may expose one to unsafe environments, and severely limits
access to basics necessities, including health care. Poor health and disability
extend their negative reach way beyond the health sector to economic development
and trade, and environmental concerns. Costs in human lives and potential from
poverty and disability strain economies of developing nations, creating a
vicious cycle (Landry, Dyck, and Raman, 2007).
Many women are discriminated against both for their embodied disability and
their gender, having less access to education, health care, and employment
("Human Rights & Persons with Disabilities," 2002).
Abuse is common against women and girls with embodied disabilities. It is
believed that 30% of youth living on the streets have a disability ("Factsheet
on Persons with Disabilities," 2007).
In India, a disproportionately large number of women and girls with embodied
disabilities are beaten in the home, 25% of the women with intellectual
disabilities have been raped, and another 6% forcibly sterilized. Additionally,
90% of children with disabilities in developing countries do not attend school
(Henderson, 2006).
A "one culture fits all policy" clouds the understanding of the issues. Many who
are labeled disabled do not consider themselves as such. Cultural and
environmental barriers are experienced differently; disparities in norms and
laws responding to disability differ across cultures; and socioeconomic class is
an indicator of access to care (Albrecht, Devlieger, and Geert van Hove, 2007).
History of UN Response to Disability
1940's and 1950's: UN focused on rights of those with physical disabilities via
social welfare.
1960's: Fundamental reevaluation of rights and policies was coupled with
initiatives within the disability community.
1970's: Brought concern for more specific protection in two declarations
addressing both disability and mental retardation.
1980's: Disability-specific international instruments were developed; global
experts reviewed the implementation of a World Programme of Action, shifting
from social welfare to promotion of equal social and economic opportunity. No
consensus was reached on a legally binding instrument, since it was felt
existing human rights instruments would cover those with disabilities.
1990's: Non-Binding agreement was reached. Economic and Social Council
elaborated Standard Rules on Equalization of Opportunities for Disabled,
addressing policy design and evaluation, technical and economic cooperation,
comparative study of policies and programs within the international community,
and development of action plans.
2000's: Brought an examination of progress in and obstacles to implementing a Programme of Action. The international community sought to combat poverty and
social exclusion, establishing a Special Committee to promote and protect rights
and dignity of persons with disabilities ("Human Rights of Persons with
Disabilities," 2002).
Current Instruments
Three separate binding instruments protect women, children, and people with
disabilities as a result of war.
Children specific instruments involve children in armed conflicts, child
prostitution and pornography, and slavery.
Unlike these international legal instruments, disability-specific instruments
have been adopted as resolutions, normative guidelines and declarations by the
UN General Assembly but are not legally binding.
Criticism
Advances
The UN instruments are shifting from the original embodied explanation for
disability to a broader conceptualization that locates disability in the domain
of abrogation of human rights.
The global scope of the UN policy demonstrates support throughout the world for
equality of human rights.
The UN policy has the potential of raising international awareness of disabling
factors and of furthering human rights for all people including those with
diverse disabling circumstances.
Limitations
The UN Convention on the Rights of Persons with Disabilities opened for
ratification 3/30/07, while a step forward, is not legally binding and there is
no enforcement mechanism, even though it is estimated 600 million are disabled
worldwide and that fewer than 50 countries have anti-discrimination laws in
place.
A policy is only as good as its enforcement and only if it is legally binding.
International policies are difficult to monitor.
Human rights language is often persuasive in the abstract but lacks substantive
content. Certain terms that are at the heart of the policy are often undefined.
This vagueness leaves definitions open for differential interpretation based
upon a State's laws and culture. Stein (2007) states: "States short of funds are
more likely to implement rights that are either easier to achieve or are
perceived as having greater utility or political cachet. Conversely, States are
less likely to promote rights where realization is thought either more
challenging, less encompassing, or out of political favor" (p. 98).
Those countries with anti-discrimination mandates, primarily wealthy, developed
nations, have instituted laws but do not provide a legal aid process to enact
the law.
UN instruments have not adequately promoted full or equal participation.
Instruments that comprise the International Bill of Human Rights do not specify
disability as a protected category. Reichert (2007) states: "Although member
states of the UN work together to draft these documents, the enforcement of
human rights generally remains within the individual countries. The United
States or any other country can choose to promote a particular human right and
ignore others" (p. 9).
References
Albrecht, G.L., Devlieger, P., & van Hove, G. (2007). The experience of
disability in plural societies. European Journal of Disability Research.
Retrieved on February 19, 2008, from
http://www.sciencedirect.com.prxy4.ursus.maine.edu/science?_ob=A...
Donoghue, C. (2003). Challenging the authority of the medical definition of
disability: An analysis of the resistance to the social constructionist
paradigm. Disability & Soceity, 18(2), 199-208.
Gilson, S.F. & DePoy, E. (in press). Explanatory legitimacy: A model for
disability policy development and analysis. In I. Colby (Ed.), Social Policy and
Policy Practice. New York, NY: Columbia University Press.
Henderson, H. (2006, August 12). Think you know the score on disabilities?
Toronto Star, pp. L04.
Landry, M., Dyck, T., & Raman, S. (2007). Poverty, disability and human
development: a global challenge for physiotherapy in the 21 51 Century.
Physiotherapy, 93(4), 233-234.
Loeb, M.E., Eide, A.H., & Mont, D. (2007). Approaching the measurement of
disability prevalence: The case of Zambia. European Journal of Disability
Research. Retrieved on February 19, 2008, from
http://www.sciencedirect.com.prxy4.ursus.maine.edu/science?_ob=A...
Mercer, S.W. & MacDonald, R. (2007). Disability and human rights. The Lancet,
370(9587), 548-549.
Parker, S. (2006). International justice: The United Nations, human rights, and
disability. Journal of Comparative Social Welfare, 22(1), 63-78.
Reichert, E. (2007). Human rights in the twenty-first century: Creating a new
paradigm for social work. In Elisabeth Reichert (Ed.), Challenge in human
rights: A social work perspective (pp. 1-13). New York, NY: Columbia University
Press.
Stein, M.A. (2007). Disability human rights. California Law Revue,
95(75),75-121.
United Nations. (2007). Factsheet on persons with disabilities. Retrieved
February 18, 2008, from http://www.un.org/disabilities/default.asp?id=18.
United Nations. (2007). Map of signatures and ratifications as of 21 February
2008. Retrieved February 25, 2008 from
http://www.un.org/disabilities/documents/maps/map11 0208.jpg
United Nations. (2002). Human rights of persons with disabilities. Retrieved
February 18, 2008 from
http://www.un.org/esalsocdev/enable/rights/humanrights.htm.
This map represents participating and nonparticipating countries in the United
Nations Convention on the Rights of Persons with Disabilities and its Optional
Protocol (2007).
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